About Us

Proud parents of five, living in the beautiful Santa Cruz Mountains. Inspired recently and decided to join the blogging revolution as a better way to keep in touch with friends and family.

Monday, October 18, 2010

Isabella's Diagnosis, Doctor, and Treatment

Chiari 1 Malformation with Syrinx (cyst) aka Holocord Hydromyelia and Neurogenic Scoliosis

"Chiari I malformation is a condition in which the lower part of the brain, called the cerebellar tonsil, herniates down through the skull and into the spinal canal. The herniated tissue presses against the brainstem and blocks the normal flow of cerebrospinal fluid (CSF). Depending on the extent of herniation, these malformations cause a variety of symptoms that range from mild to severe.

Chiari malformations may be present at birth (congenital) and are categorized into different types. Chiari type I malformation is the most common and mildest form that develops as the skull grows. Symptoms may not appear until early adulthood, causing severe headache, neck pain, and debilitating deficits." (http://www.mayfieldclinic.com/PE-Chiari.htm)





The blockage caused leaking brain fluid aka syrinx that ran the length of her spine, expanding her spinal cord and as the pressure built it caused her scoliosis...  the procedure has stopped the blockage and build up of syrinx (hydromyelia).

See the link below for the surgical procedure to correct the condition:

Isabella's principle opperation: Decompressive occipital craniectomy, C1 laminectomy, duraplasty

http://catalog.nucleusinc.com/generateexhibit.php?ID=22362&TC=&A=2"


Isabella's "Super Genius" Neurosurgeon:  Dr. Michael Edwards, Lucile Packard Children's Hospital




http://www.zoominfo.com/search#search/profile/person?personId=16203432&targetid=profile

No comments:

Post a Comment